Formerly the Bioethics Bulletin                           Volume 11, Number 1, February 2000

When Patients Demand Too Much
Talking About "Futility" to Families of Dying Patients: The Scope and Limits of Medical Judgement
Defining "Good" in Pediatric Cases
Book Reviews - When Doctors Say No: The Battleground of Medical Futility

Editor's Forum

Al-Noor Nathoo
Executive Director and Southern Alberta Coordinator
Provincial Health Ethics Network, Alberta       

Recently, the case of Andrew & Helene Sawatzky, in which a Winnipeg woman initiated court proceedings to have a 'Do Not Resuscitate' order removed from her husband's medical chart, brought to the public eye a long-standing controversy regarding value differences between health care recipients and providers.  Stemming from the theme of the 1999 Annual Conference of the Provincial Health Ethics Network (PHEN), this issue of Health Ethics Today explores various forms that such disagreements often take.  These include the enduring controversy surrounding so-called 'non-beneficial' or 'futile' treatments, conflicting opinion regarding the best of various alternative courses of therapy, and questions of best interest or substituted judgment when care recipients are incapable of making or expressing informed judgments.

While relatively few, if any, topics in bioethics lend themselves to being resolved with relative ease, the questions addressed in this issue have proven to been particularly problematic and vexing.  They involve issues of resource allocation, respect for culture, limits of patient autonomy, the dangers of conflating medical determinations and value judgments, and the difficulty involved in achieving an appropriate balance between individual preference and social good.  In addition to thought-provoking summary pieces by conference speakers Alister Browne and Ted Keyserlingk, the popular case study format is used by Stan Whitsett and Kathy Oberle to engage similar issues, with added twists of disagreements between health care providers and even (!) between ethics committees.  Chip Doig and Randall Sargent round out the issue with thorough reviews - one from an acute care and the latter from a long-term care provider perspective - on the recent publication of American Bioethicist Susan Rubin's
When Doctors Say No: The Battleground of Medical Futility.

As always, we welcome reader's comments and reactions to the thoughts expressed in these pages, as part of our continued efforts to turn 'mono-' into 'dia-' logue.

John Dossetor Health Ethics Centre
University of Alberta, 222 Aberhart Centre Two
8220-114 Street, Edmonton, Alberta, Canada T6G 2J3
Telephone: (780) 492-6676  /  Fax: (780)492-0673
Email: Dossetor.Centre@ualberta.ca

Provincial Health Ethics Network
Northern Alberta Office, 206 Aberhart Centre Two
8220-114 Street, Edmonton, Alberta, Canada  T6G3J3
Telephone: (780) 492-8239  / Fax: (780) 492-2633 
Toll free: 800-472-4066
Web Site: www.phen.ab.ca  /  Email: info@phen.ab.ca