Family and Disability Studies Initiative

Welcome to the Family and Disability Studies Initiative

The Family and Disability Studies Initiative (FDSI) is a multi-disciplinary collaboration of community organizations, researchers and practitioners that work in partnership with parents and families affected by lifelong disability.


New FDSI Publications

Pacheco, L. & McConnell, D. (2017) Love and resistance of mothers with intellectual disability from ethnocultural communities in Canada. Journal of Applied Research in Intellectual Disabilities. DOI: 10.1111/jar.12342 

Wołowicz‐Ruszkowska, A., & McConnell, D. (2017). The experience of adult children of mothers with intellectual disability: A qualitative retrospective study from Poland. Journal of Applied Research in Intellectual Disabilities.DOI: 10.1111/jar.12322 

Emerson, E. & Savage, A. (2017). Acute Respiratory Infection, Diarrhoea and Fever in Young Children at Risk of Intellectual Disability in 24 Low-and Middle-income countries. Public Health, 142, 85–93. http://dx.doi.org/10.1016/j.puhe.2016.10.014

McConnell, D., Savage, A., Breitkreuz, R., & Sobsey, R. (2016). Sustainable family care for children with disabilities. Journal of Child and Family Studies, 25(2), 530-544. DOI: 10.1007/s10826-015-0245-0

McConnell, D., Feldman, M., Aunos, M., Pacheco, L., Savage, A., Hahn, L. Dube, C., Chenier, S. & Park, E. (2016). Ameliorating psychosocial risk among mothers with intellectual impairment. Canadian Journal of Community Mental Health. DOI: 10.1007/s10597-015-9979-9

Savage, A., & McConnell, D. (2016). The marital status of disabled women in Canada: a population-based analysis. Scandinavian Journal of Disability Research, 18(4), 295-303. DOI: 10.1080/15017419.2015.1081616

McConnell, D., Hahn, L., Savage, A., Dube, C., & Park, E. (2016). Suicidal ideation among adults with disability in Western Canada: A brief report. Community Mental Health Journal, 52(5), 519-526. DOI: 10.1007/s10597-015-9911-3

Savage, A. & Emerson, E. (2016). Overweight and Obesity among Children at Risk of Intellectual Disability in 20 Low and Middle Income Countries. The Journal of Intellectual Disability Research, 60(11), 1128-1135. DOI: 10.1111/jir.12309

McConnell, D., Parakkal, M., Savage, A., & Rempel, G. (2015). Parent-mediated intervention: adherence and adverse effects. Disability and Rehabilitation, 37(10), 864-872. DOI: 10.3109/09638288.2014.946157

McConnell, D., & Savage, A. (2015). Stress and Resilience among Families Caring for Children with Intellectual Disability: Expanding the Research Agenda. Current Developmental Disorders Reports, 2(2), 100-109. DOI:10.1007/s40474-015-0040-z

McConnell, D., Savage, A., Sobsey, R., & Uditsky, B. (2015). Benefit-finding or finding benefits? The positive impact of having a disabled child. Disability & Society, 30(1), 29-45. DOI:10.1080/09687599.2014.984803