Striking the balance: Sustainable family care for children with disabilities
Balancing work and family demands is an integral part of everyday life for all families. More than eighty thousand Canadian families face an additional challenge: balancing work and family and the extra-ordinary workload and responsibilities that come with caring for a child with disabilities. When the demands of work and family and care clash, the resulting tension can have adverse effects including but not limited to clinically significant levels of parent-carer stress, anxiety and depression, and the out-of-home placement of children with disabilities.
The focus of this study was on the everyday challenge and accomplishment
of sustaining a routine of family life that accommodates the needs and
interests of a child with disabilities and all other family members. One
objective was to examine the relationship between sustainability of the
daily routine and family propensity to seek out-of-home placement for
their child with disabilities. A second objective was to investigate
child-specific, within-family and social-ecological factors influencing
sustainability of the daily routine.
This three year project was funded by PolicyWise for Children and Families (formerly the Alberta Centre for Child, Family and Community Research), and the Social Sciences and Humanities Research Council of Canada.
McConnell, D., Savage, A., Breitkreuz, R., & Sobsey, D. (2016). Sustainable Family Care for Children with Disabilities. Journal of Child and Family Studies, 25(2), 530-544.
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McConnell, D., Parakkal, M., Savage, A., & Rempel, G. (2015). Parent-mediated intervention: adherence and adverse effects. Disability and rehabilitation, 37(10), 864-872.
Breitkreuz, R., Wunderli, L., Savage, A., & McConnell, D. (2014). Rethinking resilience in families of children with disabilities: A socioecological approach. Community, Work & Family, 17(3), 346-365.